Stories From Smaller NonProfits: ISDD (Innovative Solutions for Disadvantaged and Disability)

12/16/2013

StarsThis is the 5th year of Diva Marketing's Holiday For Small Nonprofits Series. 

During December we invite nonprofits into Diva to tell their stories in their own very special way. It's our hope that you might find a new NPO that touches your heart. Heart holiday  

In between shopping, wrapping and checking your list twice, we invite you to take a breath and enjoy a few from the heart stories

At the center of this season's inspiration for joy, is of course, the children. It's our pleasure the first story is from an organization, ISDD, whose mission is to improvie the the lives/health of children living in circumstances of social and economic disadvantage.

ISDD (Innovative Solutions for Disadvantage and Disability) focuses on practical projects that serve to improve the lives of children who are vulnerable to adverse health and developmental disabilities as a result of living in circumstances of social and economic disadvantage.

Leslie Rubin _ ISSPOur story teller is founder Leslie Rubin.

Doctor Rubin is a developmental pediatrician who is originally from South Africa where he learned about how health disparities in children were related to social injustice and has found the opportunity to make a difference for children in Atlanta and around the world.

The ISDD (Innovative Solutions for Disadvantage and Disability) Story

I have been working with children with developmental disabilities for many years and I have stared a number of programs over the years. The one that stands out for me is the Cerebral Palsy clinic that I started with colleagues at the Hughes Spalding Children’s Hospital in Downtown Atlanta in 1998.

In 2002, with some funds from a family foundation, we did a survey of the 261 children we had seen in the clinic. As we expected they had a number of physical, medical and surgical complications but what struck us was the social context. We found that many of the children had been born prematurely to mothers who had smoked cigarettes, drank alcohol or taken drugs during pregnancy and that about half of the children were living with a single mother, about 30-40% with grandparents or in foster care, only a small percentage were living in 2 parent households.

This finding completely changed my view of children with developmental disabilities. I realized that developmental disabilities could be the result of social economic, educational, psychological and environmental factors and that the disabilities further aggravated the situation. Thus, I realized that these children then became caught up in what I termed the cycle of disadvantage and disability.

I then determined that I wanted to see what difference I could make in breaking that cycle and helping children lead more fulfilling and successful lives to become functioning and contributing members of society. Shortly thereafter, with the help of some friends, we formed the Institute for the Study of Disadvantage and Disability.

Our very first program was, in fact, called Break the Cycle of Disadvantage and Disability, which invited students from different disciplines in different universities to develop projects to Break the Cycle.

Break the cycle students and faciltiy

Break the Cycle Students and Faculty

Our second project was to provide support for the grandparents who were caring for their grandchildren with disabilities – Project GRANDD. 

Grandd Grandparents monthly meeting

Project GRANDD Grandparents Monthly Meeting 

The 3rd program was developed to provide health care for children whose mothers had problems with substance abuse and had been homeless – Healthcare Without Walls – a Medical Home for Homeless Children.

Now, in December 2013, we have had more than 80 students from around the country through our Break the Cycle Program along with 5 international journal supplements and a series of 4 books; we have served more than 100 grandparents with more than 200 grandchildren between then in our Project GRANDD and about 150 mothers with their children through our Healthcare without Walls – a Medical Home for Homeless Children.

Project Grandd Family Zoo OutingProject GRANDD Family Zoo Outing

We have recently changed our name to Innovative Solutions for Disadvantaged and Disability to better reflect what we do, and we look forward to continuing to develop programs that will help our society’s most vulnerable children have the opportunity to become successful and lead health fulfilling lives. 

More From ISDD

Isdd logo

Facebook  ISSD Website

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